Robynn and Brian just met w/ Dr. Bobolis. She informed them that she has only treated one other patient w/ Angiosarcoma, but it was of the breast not the liver. Since that is her only experience w/ it, she was unwilling to give a prognosis. What she did tell them, was that Radiation therapy should NOT be done. It is much too intense and the liver might be unable to handle that. Aggressive Chemotherapy is a must! Two different types will be used w/ Robynn. Treatments will last for 5 days and must take place in the hospital. She will have a break for 21 days and then start up again. This treatment will last over the course of 6 months. They will then evaluate the success of this treatment and decide where to go from there. Dr. Bobolis was very frank about the horrendous side effects of chemo and assured her she would lose her hair during her 1st hospitalization. Dr. Bobolis spoke very highly of M.D. Anderson and said she would implement any therapy that they recommended if she had the capability to do so. If Robynn qualifies for a “Clinical Trial” through M.D Anderson, her treatments would most likely take place in Texas and could not be duplicated in Sacramento.
M.D. Anderson emailed Brian yesterday to let him know the Pathology lab was reviewing the biopsy slides to confirm her diagnosis. If they agree w/ the current diagnosis they will move onto the next level in their acceptance process.
Please continue to pray for Robynn…
The “battle” is just beginning and she is determined to beat this! We need as many troops as possible, so gear up…this is war!
XOXO,
S
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