Dear Friends and Family,
Robynn's trip to Texas was not exactly what we had hoped for. They confirmed the rapid spread of the cancer and concurred with the treatment plan I had spoke of before(5 days of in-hospital chemo and 16 days off). She was given the option of staying in Texas for treatment or coming home and starting treatment this coming Monday. Her decision was simple...she wanted to be home with her family and friends.
We will not know the effectiveness of this treatment until she has undergone 2 rounds of chemo and returns to Texas in 7 weeks. At that time, they will evaluate her progress and let us know how her body is responding. Whatever the case, chemotherapy will be ever present in her life, as her doctor has informed her that Angiosarcoma that has Metastasized is not cureable.
The details of how the in-hospital treatment will go down, are unclear. Not sure of visiting hours, if there are visiting hours, may or may not be able to receive things in her room. I will let you know when things are made more clear.
What I do know is that when they arrive home Friday, they have asked for some private time with just themselves and Brady and Hailey. Please be respectful of this request and refrain from visits and phone calls throughout the weekend.
They are so very aware of your love and support and will continue to rely on your prayers to see them through this unimaginable time.
God Bless You All,
Shelley
Robynn's trip to Texas was not exactly what we had hoped for. They confirmed the rapid spread of the cancer and concurred with the treatment plan I had spoke of before(5 days of in-hospital chemo and 16 days off). She was given the option of staying in Texas for treatment or coming home and starting treatment this coming Monday. Her decision was simple...she wanted to be home with her family and friends.
We will not know the effectiveness of this treatment until she has undergone 2 rounds of chemo and returns to Texas in 7 weeks. At that time, they will evaluate her progress and let us know how her body is responding. Whatever the case, chemotherapy will be ever present in her life, as her doctor has informed her that Angiosarcoma that has Metastasized is not cureable.
The details of how the in-hospital treatment will go down, are unclear. Not sure of visiting hours, if there are visiting hours, may or may not be able to receive things in her room. I will let you know when things are made more clear.
What I do know is that when they arrive home Friday, they have asked for some private time with just themselves and Brady and Hailey. Please be respectful of this request and refrain from visits and phone calls throughout the weekend.
They are so very aware of your love and support and will continue to rely on your prayers to see them through this unimaginable time.
God Bless You All,
Shelley
12 comments:
Robynn~I have been checking the blog all day for an update. Even though this was not the kind of news I was hoping for(as I'm sure no one was) I was reminded that this is a battle! God never promised it would be easy; however, He is ever present for all of us. This is where I re-read your fight song and I will "Stand" along with you for as long as it takes. I just keep repeating one of my favorite verses; Proverbs 3 5-6 "Trust in the Lord with all your heart and lean not on your own understanding, in all your ways acknowledge Him and He will make your paths straight." You have been a pillar of faith; keep it up! We will continue to pray and thank Him for the miracles He is already preparing for you. We love you~ You and your family are not alone ~ you are being surrounded by angels, family and friends! We will not give up! :o)
Robbi,
We love you dearly and will stand by you to fight this fight. Please know that the love you have from your friends and family will see you through all of this and the outcome will be great. We are beside you at all time. All of our love to you and Brian and the kids. xxoxoxoxoxoxox Pat/Syl/Kman/Liam
Robynn,
We still stand by you in this battle. God is with you and will continue to be with throught all of this. We love you and know that this was not the news we were looking for. Honey I will be with you always and I love you some much.
Dawn
Robynn,
My name is Seth Wasserman, I work with David Bennis. After hearing your story, I want you to know that my heart goes out to you and your family. It was not too long ago that my Mother-In_law passed away from cancer and I saw what it does to a family. I believe that you have the ability to fight! You must believe and continue to believe. Things like this don't happen to good people like you and your family. I know in my heart that this will end with a positive outcome. My family will be thinking of yours in during your fight. Remember, you are a strong person and you have the ability to win! Never give up, never give up!!!!
Dear Robynn,
No one in this world knows what tomorrow brings. None of us have been promised a tomorrow. And sometimes we all get reminded that we need to cherish every moment and live for today. Every day, Robynn, we will all fight for you through prayer! And we will continue to search relentlessly for knowlege and answers. So many advances are being made every day...so you just put on those fighting gloves and get ready for battle...and yes, somedays you will fall down, but there will be SO MANY standing in line to pick you back up. Picture the Verizon commercial..CAN YOU HEAR ME NOW?? We all love you, Robynn!
God has and will continue to bless you!
XOXO,
Brandy
When Im at a loss for words and feeling numb, I turn to music; That old favorite sound of sweet angelic voices rising through the air
Robynn here are a couple of my favorites;
Belfry
Scarred, scourged, tattered, vessels frayed and frail
The shield of Faith is battered but it will not lie down to let defeat prevail
Pounding with a vengeance, hearts that beat with light
For shining in the distance, a glimpse of the tower through the blood and fog
Belfry, belfry, belfry ring Victory's chimes for us
From the coldest mountain to the deepest brine
Burst the shutters open and let the glorious sound rip apart the sky
Belfry, belfry, belfry ring Victory's chimes for us
Belfry hope has returned for good
and finally
Dreams Come True (Stand Up and Take It)
Stand up and take it, it's all I can do
None the worse for trying, neither useless nor improved
With my heart wide open, sometimes I feel so small
I've got my hopes up, please don't let me fall
Dreams come true
Say they do say they do say they do
Dreams come true
Say they do say they do say they do
And I'll stand up and take it
Stand up and take it, shoot at the moon
Blind faith or hallucination, how can you tell between the two?
When you love someone, you have to see it through
I've got my hopes up, tell me I'm not a fool...
Dreams come true
Say they do say they do say they do
Dreams come true
Say they do say they do say they do
And I'll stand up and take it
I'm gonna stand up and take it, never to decline
And if we're building castles more to the crime
I'm gonna stand up and take it, I can't control my dreams
They chase me while I'm waking, they plead and warm my sleep...
Dreams come true
Say they do say they do say they do
Dreams come true
Say they do say they do say they do
And I'll stand up and take it
Dear Robynn, My Friend,
If anyone can beat this you can! You will! I am thinking about your smiling face and sparkling spirit with me through so many of lifes' important moments. How lucky I am to have met you so many years ago. Please keep that smile on your face and that spirit sparkling through these rougher days. There are brighter days ahead.
What a wonderful friend you are. I love you with all of my heart.
Kerrie
Robynn, we communicated in several years, my fault, and I am truly sorry for that. One thing I would like you to know is that you Brian, Brady and Haley have lways been in my prayers and I love you very much. There is a saying in we use in AA, "Don't give up before the miracle happens", I believe God has lots of them left. I love you.
Dad
Robynn,
I want you and Brian to know how much I love you. I have never met two more beautiful people. Robynn you can beat this. You amaze me everyday with your courage and positive outlook on life. My thoughts and prayers are with you and your family. LOVE YOU!!!!!!
Dina
Dear Robynn,
I read your blog every day as I pray....It's been awhile since we've seen eachother or spoke, but I know you have the inter strenght to fight this test that was given to you!!! My whole community is praying for you! Remember that You've got an incredible foundation of friends and family always around you, including my family, that love you dearly!!!!! I thought a little poem might help you through some of your tougher days:
Whatever your cross, whatever your pain,
there will always be sunshine, after the rain....
Perhaps you may stumble, perhaps even fall;
But God's always ready, to answer your call....
He knows every heartache, sees every tear,
a word from His lips, can calm every fear...
Your sorrows may linger, throughout the night,
But suddenly vanish, by dawn's early light...
The Savior is waiting, somewhere above,
to give you His grace, and send you His love.
With all our love and prayers,
Kristen, Ken, Kendle and Konner Kulhavy
Dear Robynn,
My name is Heidi Kelso and my daughter Shelby was on Hailey's soccer team last season. Shelby just started Kindergarten in Hailey's class last week and I find it hard to believe that that is a coincidence. Please know that I'm here to help in whatever way I can. I'm happy to take care of Hailey whenever you need help. Shelby is very fond of her. I'd like to also encourage you to keep your eyes on Jesus. God is good and He can and will use everything for His good if we let Him. This may be a wonderful ministry opportunity for you to show your faith and Jesus' love to nurses, doctors and your children. May God give you strength. I'm a member of Westside Church and we have added you and your family to our prayer list so you have a bunch of strangers praying for you on a daily basis as well. Hang in there and may God bless you and your family. Best regards, Heidi Kelso (heidikelso@hotmail.com or 916-372-7402)
Robynn -
Having lost a sister to cancer just over two years ago and spending every moment I could with her through her battle, I can tell you that you will find strength you never knew you had - provided courtesy of our Heavenly Father. No one needs to tell you to look closely at your wonderful family and group of friends to realize how very blessed you are. Give your struggles to God as best you can for he has a plan in mind and you are his child. May he hold you and keep you in the palm of his hand, free from pain and close to your family.
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