Baby Steps!

Well friends, I must be honest and tell you today has not been a great day for our girl:(

She has been experiencing pain on the right side of her chest when she breathes, bouts of nausea and in a general feeling pretty yucky!

They have discontinued Factor 7 and are going to try Radiation to shrink the tumors. The hope is that when the tumors are smaller they will require less blood supply from Robynn and then her blood loss will decrease. They did a CT scan earlier today to figure out how to go about this procedure and were hoping to get it done this afternoon.

Her Oncologist increased her pain patch to a higher does, ordered blood monitoring every 8 hours with blood & plasma transfusions administered as needed, started her on a new anti-nausea medication as well as some IV antibiotics and wants to control her pain with medication hourly. She will continue to get Neupagen to help increase her white blood cell count as well.

Even though it pains us to not have her home, we know she is where she needs to be. The threat of infection is so great and we just can't put her at risk! Getting her stabilized and strong is our ONLY goal at this point. Remember the movie 'What About Bob'?..."Baby steps"!
We will "baby step" forever, if it keeps our girl on the right path!

Pray! Pray Pray!

XOXO,
S